Monthly Archives: February 2022

Lay Summary – A New Phase of Publication

“What is the side effect of paracetamol? Why can’t my kid get vaccinated? Which vaccine is more effective?” The patients and worried parents are looking all over on internet to treasure trove the answers to these questions. In such a scenario and many of its likes, Google becomes the go-to database for information, but it unfortunately leads to misinformation, misdiagnosis, spurious remedies, all heading to graver damage to health. And hence it becomes imperative to verify any scientific information from authentic databases and validated documents.

In an era of Covid, when every message, blog, news piece, article, all and sundry were talking about it, there was clearly a realization amongst the more aware ones, to lean on more scientifically accurate information. And it urged them to grab published articles for perusal. But the language and terminology of these documents made it arduous for them to comprehend and find what they were looking for. This informed curiosity and interest of laymen towards learning scientific facts and guidelines encouraged Patient Lay Summaries to find their place in the world of Publication and Research.

Patient Lay Summary Explained

Lay Summary is an abstract-like content or summary where complex scientific/medical/clinical information from published research articles is represented in a lucid way to cater to an audience who may or may not have any subject knowledge or scientific background. The difficult terms and methods are made easier to understand and implement and ensure that correct information goes to the reader. According to EMA, all clinical studies need to have a lay summary and should be prepared within one year.

Call for Lay Summary

The main aim of a lay summary is to answer questions of the public regarding studies or research. The basic need of lay summary is awareness to the widest possible audience. If the correct information reaches people in their own language, they can relate to it. This will increase the quality of medical research as patients will be encouraged to contribute and be partners in decision making. Talking about risk management of medicine and trials, these documents provided transparency and a clear vision to the public and are highly appreciated by patient advocacy groups. A lay summary is not only beneficial for the public but also for researchers as a way to take their work out of the room of the scientific fraternity and reach a broader generic audience. A brilliant chance to go out of the box and get attention!

But these documents are themselves a dare to write and this dare is given to medical writers.

Writing for Lay

The medical writers hold the responsibility of informing and educating patients in a way that can alter their decisions. Words can direct a reader on the journey of good health and wise choices. But how to find a midway between writing a The medical writers hold the responsibility of informing and educating patients in a way that can alter their decisions. Words can direct a reader on the journey of good health and wise choices. But how to find a midway between writing a simple and educational document? Try to seat yourself in the mind of a patient and imagine what he or she needs to learn.

Here are some key points you need to follow while drafting

  • A good Lay summary should be able to answer questions like:
  1. What was the study about?
  2. Who Participated in the study?
  3. What were the main results?
  4. Detail about the side effects etc.
  • Writer can use words or terminologies which are more homespun to patients like using brand names and not the salts.
  • Use of infographics, charts, tables, and graphs to make the data more understandable as the images will easily attract them and look at more key facts.
  • Lay summary will be a map for the patients and decide what to choose or not. So, the data and details should be relevant and not just a random collection of facts.
  • Patients are reading something to find -what after that? So, don’t forget to explain the impact of your research or review.
  • Specialized language, jargon should be avoided as it will only confuse the reader.
  • Start using the first person in your sentence formation as if you are conversing with a reader like ‘we decided’ and not ‘that was decided’.
  • A well-written lay summary should be published in a way that there should not be any wall between your work and readers. From social media to sponsor’s website, where all to publish this new type of publication document, should be on your list. To know more visit https://lnkd.in/dQuHWhHH

Down the Road

In a world where every piece of information is one click away, documents like lay summaries are catching momentum; it is the new face of Publication. According to surveys and reports, maximum internet searches encompass health-related guidance. Thereby, it is the need of hours to provide correct, complete and accurate educational information to patients. Social media plays a crucial role in transporting whatever comes in front, right or wrong and medical-writers are in a way, guards of true and authorized knowledge. In the coming years, publication will be all about reaching every corner and a lay summary is not just a right of patients but also the only route to read the right.

Beyond surgeries and doctors – How to help a cancer patient?

Needles, pills, liquid diets, and a room with the daunting odor of disease, are things a cancer patient is never devoid of experiencing. Cancer is a disease that takes a human down physically and mentally; a disease in which your own body cells refuse to listen to you. This metastasizing monster has its claws all over the globe and the entire healthcare community is leaving no stones unturned to find that perfect cure. Alas! it is still a quest. But what about those who are not equipped to fight this monster in the lab and yet want to offer their share of comfort to a patient? The family sitting next to that bed as damp as the spirit of a cancer patient; that friend who is trying best to cheer the patient while crying helplessly behind closed doors; all and everyone, who want to, but cannot; just to grab something that can make them feel better or show them that there is still light at the end of the tunnel. Well, there is indeed, light. There are numerous ways healing can be offered to a cancer patient.

  • Brew a cup of coffee at their place – Visit them

Time is the best gesture you can offer a patient. Make short visits when they need you the most: days like Wednesday mornings and Saturday nights when other people do not often meet. Do not let them feel lonely – this is the mantra. Watch their favorite show or cook a meal for them. Go on a short walk even they are willing to and talk all the nonsense with them. Before leaving, hug them tight because it is your love that will heal them faster.

  • Virtual Caring

Even if you cannot meet them, use your smartphones. Keep sending them posts, beautiful texts, videos of songs, etc. You can post a story about your past funny memory with him or share some article of their interest with them. Call them randomly and listen to them. More than talking, listen to what they have to say. Ask about what they like and dislike these days. Create an aura of warmth around them. Make sure you are always available on the other side of the phone.

  • Gifts always help in rehabilitation

Spend money on small gifts used on regular basis and not something big- and one-time use. Think about their interests or something that will ease them and cheer them up at the same time. You can also gift the caregiver.

10 Ideas for gifts

  1. Pillow
  2. Book
  3. A Plant
  4. Socks, Mufflers
  5. A massage device
  6. Subscriptions for various OTT platforms
  7. Toiletries like soap, shampoo, etc.
  8. Food that is compliant with the dietary restrictions of the patient
  9. Hot water bottle
  10. A box to keep all their medicines
  • Make a Project

One extra hand is always welcome. Plan to do one of their projects or errands. Clean their kitchen or water their plants. You can always help the caregiver in completing his tasks; it not only helps finish tasks faster, but also is a wonderful way of reassuring your presence even to the caregiver who is undoubtedly exhausted emotionally and physically. Visits to the doctor can be emotionally very draining even if the patient is ready for what is coming. Going along for a visit is not a bad idea at all as it may take rub off some level of anxiety, if not completely. If it is your co-worker battling cancer, a gesture of help in their regular work or targets can go a long way. Having said this, being the one wearing a cape might although sound like a perfect plan, this often comes with a risk of making the patient feel invalid, dependent, and incapable. And that totally defeats the purpose. Be the empowering force, not the crutch. Do not make the patient feel weak; they do not need you, but you want to be there. Remember this.

  • Ask for help from the world

 Sometimes a patient needs economic help or alternate therapy to fight that out. But with the fear and shame of being tagged as weak, help stayed unsought. But even in those scenarios, doors are not shut. There are many waiting outside to help; organizations helping cancer patients financially and through palliative care, are growing leaps and bound. Find the one fit for your loved one.

Battle against cancer has been made easier through organizations and NGOs like:

  1. Charutar Aarogya Mandal  
  2. Cuddles Foundation
  3. Make a Wish Foundation
  4. Cancer Patients Aid Association
  • Charutar Arogya Mandal

A pledge to provide treatment at such affordable rates that any underprivileged can dream to survive cancer was taken by Dr. H. M Patel, former Union Finance and Home Minister, former Union Finance and Home Minister. The team of experts provides free consultation, free treatment for women and children belonging to BPL families, and a promise to hold your hands in this journey. Cancer drains the whole family emotionally and financially. In such a situation, Charutar Aarogya Mandal took a step ahead to deliver better healthcare to all regardless of what is your salary. It started with 136-beds now turned into a post-graduate institute offering healthcare to thousands.

  • Cuddles foundation

A room of people with one mission to heal children with cancer is what cuddles look like. They cuddle the children with nutrition and diet. This foundation works on the principle that nutrition is the key to restoring the health of a cancer patient. More than 40 percent of the children are found malnourished at the time of diagnosis. Through Cuddles Foundation, people start fundraisers at Give India on their birthdays, anniversaries, etc. and the money collected is medium to provide nutrition to the kids struggling with cancer. Cuddles foundation work through an app known as Food Heals with various hospitals and dietitians to reach their goal of beating cancer with food. A stranger can be a life savior for many children with a vision to heal the pain.

  • Make a Wish Foundation

You do not need to be a surgeon to save a life always. Sometimes you can make a little wish come true. It is not the medicines but sometimes a dream can also increase the life span. Make a wish is like a team of archangels on earth who are completing the wishes of children suffering from life-threatening diseases like cancer. A toy airplane or a one-day trip can create magic on their faces. The imagination of a kid smiling and healing with just a wish becoming real is so pleasant. These imaginations and wishes are turning solid at Make a Wish. They have a completely organized plan of who can refer a child and how can you help with genuine paperwork. Parents say that their kids battling cancer at such an early age when they do not even understand the meaning of life and death, someone making their little wish true is like a supernatural power. Sometimes it is the heart that needs to be nourished more than cells.

  • Cancer Patient Aids Association

This is a registered charitable non-government organization that announced a war against Cancer in 1969. They work to manage cancer patients from awareness to aiding beyond medical treatment. This NGO works at different steps to murder cancer like offering fellowships to Patient Mentoring Program. They work at the regional level and involve patients to assess the needs and requirements. National Cancer Control Programme is their weapon in this battle and hence providing technical support to the country and the neighboring countries like Bhutan, Nepal, etc. This organization is working at a global level with a broader vision of cancer-free earth.

In the road of darkness and disease, walk along with them

Doctors and treatments are doing their part, but it is more about inner strength than some colorful pills. That inner strength is enhanced by support from the people around the patient. The willpower and reason to feel good again are what will antidote them. Your one good action put with the right intention can do magic. Do not be afraid and hold your loved one tight on this dark night. You can be a ray of sunlight in their foggy dawn.

References

https://www.giveindia.org/blog/10-cancer-care-ngos-in-india-helping-poor-to-fight-cancer/

https://www.ncbi.nlm.nih.gov/books/NBK4020/

Why was my manuscript rejected? – Talking about 5 most common reasons for rejection in journals

“We are sorry to inform you that your submission is rejected”- This is something you never want to hear or read but this is most often experienced. These words are disheartening. When we start research, it becomes a dream to see that work turning into pages of a journal. But after so much hard work and research what is something that we lack? This blog will unlock your mysteries and let you know the reasons behind that NO, that rejection. Let’s find out what goes wrong and what one should do.

  1. Technical Screening turning into a failure

The first problem can be in your basic check. From plagiarism to figures, something has gone wrong. In technical Screening, manuscript is rejected if: –

  • There is some issue with language
  • Imprecise hypothesis  
  • Main titles, references, list of authors etc. crucial elements are missing
  • There is no proper conclusion
  • Flaws in study design

2. Deviation from aim and outlook of journal

The biggest and smallest mistake we can do is not finding the perfect journal. Before sending your submission, one must know what the aim and scope of the journal is. If your manuscript is not adding any value to the journal, they will reject it. To learn how to find where to publish and how to find that right key visit https://lnkd.in/drKKnPHe

3. Do not Put your feet in two boats

Journals usually mention that if your work is under review at some other place then they will not consider it. So, do not submit your work at two journals, you might sink. Find the journal interested in your research and focus in one direction.

4. Format it before sending

Journals have their own writing style, their way of transforming the manuscript. It begins from font size, font style and can never end because definitive amount of margin is also essential for a journal. So, it is especially important to meet the standards set by a journal and follow the instructions about guidelines.

5. Finding Originality and Significance

If your submission is extension or another version of some research paper, you have high chances of getting a NO. If the journal does not find any significance in what you are trying to convey then also your submission is rejected.

Take Away Points

For the buds of researching world, it is challenging to get their manuscript accepted. But if you know the secrets and tips to the road, this world is welcoming. The world of publishing and medical writing is a place where you need to know what, why and where. Planning matters here.

To turn the “NO” into “YES”, Turacoz is conducting a webinar on Publishing Planning, and this is your chance to track https://lnkd.in/drKKnPHe

References:

  1. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3035881/
  2. https://www.elsevier.com/connect/8-reasons-i-rejected-your-article